Babies

Instead Of Showing What People With Rare Diseases Can’t Do, This Campaign Shows Us What They Can

A year ago we, Irena Mila, Elena Fidanovska, Verica Piperevska as authors of this artworks, the sociologist Ivanna Hadzievska and Ance Tufekdzieva, Daniela Mircheska as parents of kids with Down Syndrome and Autism and Teano Cardula as a sister to our Erato, started our first photo – project, first of its kind in Macedonia called „Awakening“.

With couple of exhibitions and events during the past year we managed to rise the awareness about the people with disabilities and rare diseases and conditions demonstrating what they could do rather than what they couldn’t. In our campaign our friends with condition Down Syndrome, Autism, HAE, Gaucher’s disease, Tuberous sclerosis, Јуvenile dermatomyositis, Spinal muscle dystrophy, hearing loss and other rare diseases, were the models showing us dear dreams and what they are and what they can do.

Every childhood is unstoppable and knows no limits. All children have their own dreams and desires, and the way they make their dreams come true defines them as persons. As parents, we have to give them all the space they need so they can express themselves, to give them support in their small movements and to show them that there are no limits, to show them that they can be anything they want and we can do that if just give them chance.

These days we are celebrating one year of „Awakening“. Our aim was to use art to break down barriers and to show the people behind disability and to give them a stronger voice in the community and to show our friends and families in the same situation that they are not alone. We know that their sons/daughter, brothers and sisters, fathers, mothers are not afraid to love and to be passionate about their dreams.

We have made the first successful step to rise the awareness in our small, fragile but full of prejudices society. And we are thankful that our models are our powerful friends. And we love you!

Huge gratitude to the new Prime Minister of Macedonia Zoran Zaev for supporting this campaign from the beginning.

We thank the Prime Minister for the message that he conveys, that political parties play an important role in the regulation of policies associated with rare diseases and conditions!

P.S- Me Irena Mila and Elena Fidanska started working together as Willyou? in 2012, but this was our most beautiful project.

More info: willyou.mk

#1 Lisa Is Our Little Princess, Singer, And Model; Down Syndrome

Lisa Is Our Little Princess, Singer, And Model; Down Syndrome

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Final score:50pointsIrena MilaPOSTTheUndertakersDogBiscuits;3 5 years ago

aaw shes an amazing little star

7ReplyView more comments#2 Grandma Milica Is 65, She Likes Sunny Mornings And Folk Songs And Dances; Down Syndrome

Grandma Milica Is 65, She Likes Sunny Mornings And Folk Songs And Dances; Down Syndrome

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Final score:42pointsIrena MilaPOSTOk Ha-Neul 5 years ago

we would get along <3

5ReplyView more comments#3 Jane Is The Only Footballer Who At The Same Time Is A Formula Driver! He Has Met Ronaldo. Jane Is Already Very Famous; Spinal Muscular Atrophy Sma

Jane Is The Only Footballer Who At The Same Time Is A Formula Driver! He Has Met Ronaldo. Jane Is Already Very Famous; Spinal Muscular Atrophy Sma

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Final score:40pointsIrena MilaPOSTBlue Cicada 5 years ago

I love it when parents personalize wheelchairs and other devices.

3ReplyView More Replies…View more comments#4 Verica, She Wants To Paint The Whole World With Water Colors; Down Syndrome

Verica, She Wants To Paint The Whole World With Water Colors; Down Syndrome

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Final score:38pointsIrena MilaPOSTSilent Skeleton 5 years ago

She looks so happy! I want to see what cool things she paints :o)

8ReplyView more comments#5 Trajce’s Passion Is Music And Favorite Instruments – Accordion And Guitar; Down Syndrome

Trajce's Passion Is Music And Favorite Instruments - Accordion And Guitar; Down Syndrome

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Final score:34pointsIrena MilaPOSTMarion Capriotti 5 years ago

His joy is contagious! Love the colorful toy guitar, but I hope he has a real guitar, too – I bet he would practice intensely and learn to play really well.

6ReplyView more comments#6 Maxim, He’s Our Sweetе! Down Syndrome

Maxim, He's Our Sweetе! Down Syndrome

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Final score:32pointsIrena MilaPOSTSilent Skeleton 5 years ago

Little Prince :oD

6ReplyView more comments#7 Dejan Is Our Hero And Boxing Is His Favorite Sport And He Adores Action Movies; Down Syndrome

Dejan Is Our Hero And Boxing Is His Favorite Sport And He Adores Action Movies; Down Syndrome

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Final score:29pointsIrena MilaPOSTMama Panda 5 years ago

Move over Ali!

2ReplyView more comments#8 Ilina Loves Kick-Boxing, Jumping On Bed, Swimming And Drawing; Juvenile Dermatomyositis

Ilina Loves Kick-Boxing, Jumping On Bed, Swimming And Drawing; Juvenile Dermatomyositis

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Final score:29pointsIrena MilaPOSTSilent Skeleton 5 years ago

AAAh she’s adorable!

6ReplyView more comments#9 Matilda Is Our Fancy Lady. She Knows To Cook Really Delicious Food; Down Syndrome

Matilda Is Our Fancy Lady. She Knows To Cook Really Delicious Food; Down Syndrome

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Final score:28pointsIrena MilaPOSTMarion Capriotti 5 years ago

I love her pose and her attitude – make the world more delicious, one recipe at a time.

3ReplyView More Replies…View more comments#10 Dejan And Trajce, They Are Our Cute Actors! Down Syndrome

Dejan And Trajce, They Are Our Cute Actors! Down Syndrome

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Final score:28pointsIrena MilaPOSTMarion Capriotti 5 years ago

They look like such fun, and they’re having lots of fun, too.

2ReplyView More Replies…View more comments#11 Cako And Florence. Aleksandar Matovski Talked To The Un On The World Day Of People With Down Syndrome. Florence Swim, Act, Dance. They Have Been In Love For More Than A Year; Down Syndrome

Cako And Florence. Aleksandar Matovski Talked To The Un On The World Day Of People With Down Syndrome. Florence Swim, Act, Dance. They Have Been In Love For More Than A Year; Down Syndrome

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Final score:27pointsIrena MilaPOSTearringnut 5 years ago

what beautiful love story

2ReplyView more comments#12 Betty And Kostadinka They Are Best Friends; Down Syndrome

Betty And Kostadinka They Are Best Friends; Down Syndrome

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Final score:23pointsIrena MilaPOSTTheresa Goddard 5 years ago

Silentnomore.com

1ReplyView more comments#13 Ilina Has Sparkling Stars In Her Eyes And She Has A Beautiful Voice. She Always Has The Support Of Her Two Sisters; Down Syndrome

Ilina Has Sparkling Stars In Her Eyes And She Has A Beautiful Voice. She Always Has The Support Of Her Two Sisters; Down Syndrome

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Final score:22pointsIrena MilaPOSTMama Panda 5 years ago

Something tells me that her singing makes everyone happy!

2Reply#14 Milos And Pepica Communicate With Signs And Pure Love; Hearing Loss

Milos And Pepica Communicate With Signs And Pure Love; Hearing Loss

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Final score:22pointsIrena MilaPOSTMama Panda 5 years ago

So beautiful! <3

1Reply#15 Erato Wants To Watch Ads, Listen To Music And Play On A Computer. She Is Known As The Girl With The Most Beautiful Hug; Autism

Erato Wants To Watch Ads, Listen To Music And Play On A Computer. She Is Known As The Girl With The Most Beautiful Hug; Autism

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Final score:21pointsIrena MilaPOSTHolly Hofmann 5 years ago

And most beautiful hair!

8ReplyView More Replies…View more comments#16 Ognen Wants To Swim And He Plays Tennis. He Has A Great Knowledge About The Dinosaurs. He Will Be A Paleontologist! Hereditary Angioedema (Hae), Down Syndrome

Ognen Wants To Swim And He Plays Tennis. He Has A Great Knowledge About The Dinosaurs. He Will Be A Paleontologist! Hereditary Angioedema (Hae), Down Syndrome

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Final score:21pointsIrena MilaPOSTMarion Capriotti 5 years ago

Good for him! We need all the scientists we can get in this world.

1ReplyView more comments#17 Markian Is A Wonderful Child, With A Big Heart, Full Of Love For All The People; Tuberous Sclerosis

Markian Is A Wonderful Child, With A Big Heart, Full Of Love For All The People; Tuberous Sclerosis

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Final score:20pointsIrena MilaPOSTKirsa Rasmussen 5 years ago

Beautiful child

4Reply#18 Betty’s Favorite Sport Is Making Soap Bubbles. She Loves Summer And Ice Cream From Chocolate; Down Syndrome

Betty's Favorite Sport Is Making Soap Bubbles. She Loves Summer And Ice Cream From Chocolate; Down Syndrome

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Final score:19pointsIrena MilaPOSTRebekah 5 years ago

The sport of making soap bubbles. Love this.

4ReplyView more comments#19 Kostadinka Likes Rain And Colorful Umbrellas. Favorite Fun – Jumping In The Puddle; Down Syndrome

Kostadinka Likes Rain And Colorful Umbrellas. Favorite Fun - Jumping In The Puddle; Down Syndrome

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Final score:18pointsIrena MilaPOSTMama Panda 5 years ago

Nothing like a good ol’ puddle jumping contest!

1Reply#20 Ivan Adores Music. He Dreams That One Day He Will Drive A Bus… Developmental Delay

Ivan Adores Music. He Dreams That One Day He Will Drive A Bus... Developmental Delay

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Final score:17pointsIrena MilaPOSTRaptorex 5 years ago

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#21 Matilda And Her Freedom! Down Syndrome

Matilda And Her Freedom! Down Syndrome

Source: boredpanda.com

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